a request fro Sylvia of Mold II
Good afternoon ladies Sylvia who is a new member at Mold II got in touch with me & asked if I would be able to put a poster on the blog about a coffee morning she is involved with. Well! This is your blog - so I said yes. Here is the poster & after the photo there is a letter from Sylvia about the cause; Here is the letter; "The reason the Histio UK charity is so important to my family is because when my grandson was 20 months old he spent 3 weeks on life support followed by 40 weeks of chemo after suffering an illness called Haemophagocytic Lymphohistiocytosis (HLH). It is so severe that if not caught within 3 weeks is invariably fatal - thanks to Alder Hey for recognising it. Ironically he went into oncology 4 years ago yesterday (my birthday!). He is now in remission but there is no timescale on when or if it will come back. The only 'cure' at the moment is a highly risky bone marrow transplant so getting other treatments is vital. There is ...